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Showing posts from April, 2012

Journey to Jesus

Here goes the rewrite.  …after losing probably 1.5 hours of work.  Boo. I want to give a bit of a back story to bring those of you up to speed who may not know what has been going on with our family, more specifically our little girl Lydia.  She is 20 months old.  Last September-ish we noticed that her right eye had some nystagmus, basically her eye bounces back and forth when she tries to focus on something.  She has always had nystagmus but it got worse last fall.  We saw one of the pediatricians in her pediatrician’s practice in October.  She recommended that we see an optometrist.  We did that.  He was really great and worked diligently to examine Lydia.  We had to visit twice to get a complete exam but he threw around the idea that she may have ocular albinism.  He talked to our pediatrician after her return from maternity leave.  They both decided that we needed to have an MRI done to ensure she didn’t have a brain tumor.  I had Knox right before Thanksgiving and we waited