Our little lady
Jason's post on Facebook has prompted many of you to lovingly reach out to us. Thank you for that! Thank you! Thank you! Your kindness and care is felt and so appreciated! I truly need to give a little history in order to explain the gravity that we feel when it comes to Lydia's vision (and Knox's for that matter). We've been sitting in a whole lot of mystery for a very long time with those two. It began with Lydia at the age of 15 months. She had nystagmus from birth that never resolved and seemed to worsen around that age. We visited our pediatrician, who referred us to Riley for an MRI to rule out a brain tumor. That was clean and we shortly followed up with our ophthalmologist. He was quickly puzzled by her anatomy and sent us to a world-renown retinal specialist in Michigan. She and Knox have both been through a significant amount of testing. Our Michigan specialist put them in a research study and intended to get genetic testing to give us some more